Response to the Daily Post: Complicated

What a word for the present time on the planet Earth!  If there is one person in this world who’s life is not complicated, I would love to meet him/her.  As a resident of the United States, my life has grown more complicated throughout this election year.  I think our forefathers would be ashamed of our political candidates.  Such unrest, such violence, such spewing of hate, it is no longer an issue of who do I vote for, but why?  As a member of two minority groups, women, and the disabled, I am stumped as to the choices I am faced with.  Good luck to us all.

Via the Daily Post

dailypost@word.press.com

Response to the Daily Post: Reach

I approach this from a more practical position.  I am 69, in a wheelchair, in a handicapped apartment.  The lease says handicapped, but I find the shelves and cupboards are regular height.  I have a rented wheelchair, and even with a pillow, I am not tall enough to reach the cupboards.  The “reachers” that are supposed to help are fairly unreliable – nothing heavy such as a small bag of sugar, can be retrieved with one.  The kitchen sink is hard to reach into, and has no spray attachment, which would make it much more convenient.  Even the shower is a challenge, although there is a removable wand.  It’s just hard to reach it from the bench on the other end of the tub.  I’m sure disabled people did not design these apartments.  I never think of myself as disabled until I want to cook something and can’t reach all the burners.  Nevertheless, I am privileged to live where I am, and thankful for it.

Via:  The Daily Post  

dailypost@word.press.com

Praise

I never realized how important praise was until I had children of my own.  As a child, I didn’t receive praise, at least I can’t remember any.  My father was the head of the household and at dinner time, he was the speaker.  The rest of us listened.  As an adult, I think back and realize he probably was never praised either.  These unfortunate traits have a way of perpetuating.  As a mother, I read books on what I should do and in the sixties and seventies, “expert” ideas were very different.  One concept I will never forget, and saved my kids I’m sure, was not letting your own expectations cloud their work. For example, if they had a job to do, and did it well, but not exactly as you expected, praise them anyway, because they did the best they could, and deserved that praise.  As a child, and a teenager, I tried to live up to what was expected of me. Failure to do so usually led to an embarrassing action on my dad’s part.  Even as an adult, the criticism didn’t stop.  This is why praise is so important.  It affects self worth.  And when all else fails, you just have yourself, and what you think of yourself.  I’m learning a lot from my daughter and her husband about raising children.  They are exceptional parents.  It amazes me the confidence and wellbeing their children feel.  And not obnoxiously so, but in a positive self awareness.  I could brag about them and their achievements all day, as most mothers and grandmothers could.  But I think the basic premise is praise.  Praise for a job well done, a compassionate attitude, a love for each other, and others, in general.  They praise each other and take pride in each other’s accomplishments.   

Be like the Boy Scouts – “Prepared”

An important thing to remember is, the Boy Scout motto:  Be Prepared..When you are first trying the appliance (bag) you might have a leak. It usually depends on how much liquid you are taking in, but it might be the fault of the appliance. In any case, each time you leave your home, you should have the following items pre-packed and ready to go.

Two new bags/appliances
Any adhesive items you use to attach it
A paper diagram and pen to show how to cut the hole, it takes practice
Small scissors to cut the appliance the desired width,
I suggest the medical type with rounded points
Two washcloths
One hand towel
Wipes, the non-alcohol type
Sanitary hand wipes, not for use on ostomy skin
Two pairs of underwear
One pair of pants, I carry a black pair because it will match anything
A pair of socks just in case the leak gets out of control
The grey ostomy disposal bag you receive with the bags for the used one
Ziplock bags to carry the wet items home

Sounds like a lot, doesn’t it? I have used everything on the list when first starting out. If you read my initial post, you know why. It was Leak City for a while. Everything fits in a backpack or large purse or bag, messenger bag, briefcase, etc. I’m writing this for men and women. This bag will save you embarrassment in a day of sight-seeing, shopping, or work. I’ve been there. It may be that you are perfectly fitted the first time and never have a leak. Great! But it only takes once to make you wish you took a pre-packed bag. I recommend two appliances because until you get used to trimming the hole for the ostomy, you may accidentally cut the appliance. You cannot mend it with tape. It’s no longer useful, just dispose of it. You can always precut the bags at home and pack them. That’s easier than trying to wrestle around with stuff in your lap in a small restroom booth.

Now that it’s been a year, my ostomy is the size it’s always going to be, so I don’t carry scissors, I use the pre-sized, already cut type. I don’t use any adhesive cream, lotion, spray or powder, so that lessens the bag bulk. I do carry two appliances, washcloths, and non-alcohol wipes, underwear, and a pair of pants. I’d rather be safe than sorry. Restrooms aren’t always ideal so I carry my own washcloths, etc.

I have my routine down, and a trip to a restaurant, shopping center, whatever, is much more enjoyable.You may not need any of this information. But if you do, I hope it’s useful.

The following website is a good one:   fightbladdercancer.co.uk