Repealing Obamacare is Life or Death for People With ME/CFS

Look at this from Jamison’s point of view when you think about healthcare.

Jamison Writes

This essay was originally published by TalkPoverty and republished by CommonDreams.

I haven’t been able to get out of bed on my own in nearly two years—and I’m only 28 years old.

For more than a year I was unable to speak, sit up, or eat solid food. In June 2015, first responders wheeled me into the emergency room, too weak to eat, drink, or elevate my head. I had been, essentially, waiting to die of dehydration. Besides administering some much-needed fluids, doctors offered little help.

I have among the most severe cases of chronic fatigue syndrome (sometimes known as myalgic encephalomyelitis, or ME). It’s a devastating multi-system disease that’s been given a patronizing name. The cause is still unknown, which makes getting a proper diagnosis—often necessary for insurance and disability coverage—near impossible.

When I was released from the hospital in 2015, my family learned that California’s state-administered Medicaid…

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Daily Prompt:  Ordinary

A life less ordinary, yes, you could call it that. Remember that old TV show, “This Was the Week That Was”? It’s been one of those. My grandson bought a used car, been driving well for over a year now. I have to say I could always hear him parking outside the apartment by the exhaust system. The motorcycle guy isn’t that loud. But he invested $400 two weeks ago to have it repaired to be quieter. I shouldn’t say this, but I miss the loudness. One week ago he was driving home from refereeing soccer and the car stopped dead, needs a $3000 new engine. But everyone’s okay, no accident involved. Just a bad week. You can call it Murphy’s Law or just life.

I’m just an ordinary mother and grandmother, although I doubt my family would agree. I didn’t say perfect, I have quirks just like everyone else, but at least I admit them! Being the “Merry Widow” for almost four years now, I must admit it’s lonely. You don’t need to have a perfect marriage to miss your constant companion of over forty-five years. That’s (way) over half my life. . way over!  

Two Christmases ago we were playing the game “Life”and the table was big so someone else moved my car for me. It came to a question, “do you want to do (blank) or have kids?” So being the honest, forthright person I am, I blurted out, “well if it means having sex, yes, otherwise, no.” Playing at the table were my two teenage granddaughters, my daughter, and my son. The teens were shocked and I got the usual, “Grandma!” out of the one whose personality is most like mine. She’s a freshman in college now, but her reactions haven’t changed. I love that. I guess it was deemed inappropriate, but it’s fun to shake up the old group once in a while.

My only and favorite son in law does it too. His wife, my daughter, was celebrating winning a game of WII by dancing around the living room. He casually remarked, “I need to move that WII into the bedroom.” His twelve year old son started laughing, getting red, but couldn’t stop laughing.  

So is life less ordinary for our family? Certainly, and I wouldn’t want it any other way. It’s heavenly like it is, even with the little and big problems.

Prompt #2038

He was not responding to her.  She was no longer surprised, this was his way, distracted, quiet.  It bothered her because she never knew if he was really listening.  So she kept talking, sometimes changing the subject, changing her tone, a test of sorts to see if he would respond.

They hadn’t been married that long, and she thought she was aware of his personality and habits, but nearing thirty, single, and thought she was in love, she took the leap.  All the while she thought it would be the way she dreamed, a fantasy realized.  His seeming moodiness, distracted behavior, built up after a time.  Trying her hardest to be what she thought he wanted, she was finally losing interest in pleasing him. Today after a brisk walk to the coffee shop, she tried to garner his attention with what she thought was an amusing story.  His attention kept drifting to the passers by.  

It was a cold, dreary morning.  He would have liked to stay in bed.  He barely listened to her speaking about some silliness at work.  How she could chatter on about nothing used to amuse him.  When he first met her, he was instantly attracted to her buoyancy, her effervescent personality.  He mistakenly thought she was the answer.  He had been a loner all of his early years.  She came into his life at an unhappy moment, and he relished in her vivacious demeanor.  Surely she would influence him in a positive manner.  That’s when he deceived himself into believing it was love.  She had taken him under her wing and tried to nurture him into a happier self. Now he was beginning to think it was all a mistake.

It was only a few short months before they both realized they weren’t being themselves.  Trying to be what the other wanted grew tiresome and their first loving attraction adjusted into empathy.  Their life together wasn’t a cultivated dream any longer.


A lot of people have a “thing”about water. In Colorado we had good tasting water, we never really questioned if it was good for us. In Houston the water was so chlorinated you couldn’t drink it right out of the tap. Our son in law worked finding areas to set up mini windmills in different areas of Texas. He also could set up these water mills that provided filtered water very cheap, and maintained these mills as well.  We learned about some of the extensive filtration system. We started using the water and it  tasted good.

Here in Wyoming, where I live, the water to most people isn’t good. Being the cantankerous person I am, I refuse to spend money on bottled water. If I go out and buy tea or juice drinks so popular now, I save the bottle, put it in the dishwasher and fill it with tap water and refrigerate it. It tastes great and recycles the bottles.

Growing up in Vermont, of course we had great water. I remember watching my dad do water witching. That’s another story.
Side note. Did anyone see CBS morning news on Friday? They had a segment on my home state Vermont, and how we used to make maple syrup. If anyone taped it, or ahem, recorded it? Please leave a comment below. Thanks.

Have a good weekend!

SoCS-3-25-17- March    and        Song a Day Challenge, Day 5

“Two, two, two mints in one!” The jingle from the Doublemint gum commercial, for those of you young enough to be my grandchildren…. but yesterday I was looking for a song or composer for the last day of the song challenge, so looked up John Phillip Sousa.

Have a great weekend and if you need inspiration for working, just listen to a few Sousa marches!😄🤠


My last two nominations for this challenge are: and Have a blast with it!

The rules are:
Post a song a Day for five consecutive days
Post what the lyrics mean to you ( optional)
Post the name of the song and video 
Nominate two different bloggers each day of the challenge.

The Friday Reminder and Prompt for #SoCS Mar. 25/17

Song a Day Challenge, Day 4

I was listening to some marches but will wait till tomorrow.  Because it’s Friday, I thought this would be appropriate.  Jerry Lee Lewis singing “Great Balls of Fire”.

Jerry Lee Lewis is an American singer-songwriter, musician, and pianist, often known by his nickname, The Killer. He has been described as “rock & roll’s first great wild man.” Wikipedia. Jerry was involved in a scandal and I’ll probably be criticized for adding him here.  The song in this case, is entertaining.


I nominate today: and  Good luck with it!  Hard to choose😉

The rules are:

Post a song a Day for five consecutive days

Post what the lyrics mean to you ( optional)

Post the name of the song and video 

Nominate two different bloggers each day of the challenge.


Mrs. Trumble’s Walker

“Yo, this is Bob. What’s the problem?” He turned down the microphone on his call button in case it was something gross. He never knew what was coming next for him. Checking up on a locked door or shooing kids out of the Spencer’s store, it was all the same to him. It wasn’t a bad job, and it kept him busy since he retired from the police force. Those were the days, when he was young and full of vigor. He was sorely disappointed to realize that the constant action he was schooled for was not a daily event. Most of the time it was paperwork, forms, and more paperwork. At least he learned to type, he chuckled to himself.

“Okay I’ll be right there”. Mrs. Trumble got her walker stuck in the escalator again. How many times has he reminded her she is no longer able to use the escalator, to take the elevator instead. He smiled thinking he might be in that position soon. God help me remember its elevator, not escalator.

He found Mrs. Trumble hanging onto her wedged-in walker, as a crowd of shoppers was backed up behind her on the ever ascending stairs.